First observed in Europe in 2008, Rare Disease Day was established by Eurordis, (the European Rare Disease Organization). In 2009, NORD was asked by EURORDIS to sponsor Rare Disease Day in the United States. NORD accepted and 2014 celebrates the 6th annual RARE DISEASE DAY USA.
The goal of Rare Disease Day is to raise awareness amongst the general public and decision makers about rare diseases and the impact that they have on patients’ lives.
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